That is quite a thing. I was not familiar with it previously. 1 out of 33,000 is pretty rare, at least.
So you are completely deaf now? That's terrible. What is it like being deaf after you had your hearing? Is there any sound at all, like a ringing or hum or something or is it just quiet.
Do you think Richard Sherman will leave the shehawks now that lynch retired?
Ive had a number of people here on Geekhack ask me about various health issues that I have, so without further ado heres a GeekhackAsk Me AnythingAsk Away.
Here is an AMA I did on Reddit a while back
https://www.reddit.com/r/IAmA/comments/25uy6f/i_have_neurofibromatosis_type_ii_ama/
A few points
- In short, NF2 causes tumors to grow on nerve endings through out your body, primarily on the brain and brainstem but not limited to those areas
- I was diagnosed with it when I was 9. It is hereditary and was passed on from my father
- The first surgery(s) I had was when I was 10, it was to remove a single tumor from my right Cochlea, which left me deaf in that ear. It ended up being 3 tumors, and this caused complications so I ended up having 3 surgeries (not one surgery per tumor)
- I had another surgery in 2003 (IIRC) to remove 2 tumors from my spine. The surgery went well but a few years later my balance became awful and had to go through nearly a year of physical therapy to regain the ability to walk without assistance
- In 2010 I completely lost my hearing through a tumor "killing" the nerve in my left ear
- In 2010 I went through numerous surgeries (mostly due to complications) to remove the beforementioned tumor
- The above surgery in 2010 had a number of complications; It left me legally blind in my left eye, paralysis on the left side (had about 6 months of PT for this, still not normal though), it left my face nearly completely paralyzed (Cant close either eye, smile, talk normally ... general bs that would come from that)
- NF2 took my father in 2001, and a brother in 2003
Im sure Ive missed a lot, if you have any questions feel free to ask.
Ive had a number of people here on Geekhack ask me about various health issues that I have, so without further ado heres a GeekhackAsk Me AnythingAsk Away.
Here is an AMA I did on Reddit a while back
https://www.reddit.com/r/IAmA/comments/25uy6f/i_have_neurofibromatosis_type_ii_ama/
A few points
- In short, NF2 causes tumors to grow on nerve endings through out your body, primarily on the brain and brainstem but not limited to those areas
- I was diagnosed with it when I was 9. It is hereditary and was passed on from my father
- The first surgery(s) I had was when I was 10, it was to remove a single tumor from my right Cochlea, which left me deaf in that ear. It ended up being 3 tumors, and this caused complications so I ended up having 3 surgeries (not one surgery per tumor)
- I had another surgery in 2003 (IIRC) to remove 2 tumors from my spine. The surgery went well but a few years later my balance became awful and had to go through nearly a year of physical therapy to regain the ability to walk without assistance
- In 2010 I completely lost my hearing through a tumor "killing" the nerve in my left ear
- In 2010 I went through numerous surgeries (mostly due to complications) to remove the beforementioned tumor
- The above surgery in 2010 had a number of complications; It left me legally blind in my left eye, paralysis on the left side (had about 6 months of PT for this, still not normal though), it left my face nearly completely paralyzed (Cant close either eye, smile, talk normally ... general bs that would come from that)
- NF2 took my father in 2001, and a brother in 2003
Im sure Ive missed a lot, if you have any questions feel free to ask.
Have you considered cochlear implants?
I really find that number low. Minus immediate family I've only met one person with it.
Show Image(http://i.imgur.com/l7cRf3W.gif)
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Totally. Playing racing games really helped me regain muscle control in left hand
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Do you think sign language communicates faster than mounting a small display on you some where.. you could become cyborgsharkdude.
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Do you think sign language communicates faster than mounting a small display on you some where.. you could become cyborgsharkdude.
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Do you think sign language communicates faster than mounting a small display on you some where.. you could become cyborgsharkdude.
That would, of course, be easier for translating ideas to others who do not know of ASL, but it wouldn't be helpful for understanding other deaf people using ASL.
He should learn how to communicate with others who are deaf since they should be the ones who understand him best!
And then he can carry around a notebook and pen for daily use.
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Do you think sign language communicates faster than mounting a small display on you some where.. you could become cyborgsharkdude.
Much faster. I've seen numerous ppl sign faster than talking
Is it possible for you to hear via bone conduction?
IIRC some people can be trained to hear through vibrations with their sense of touch like blind people see with sound.
Its possible, but I've wasted years of my life trying to change the inevitable. I'm now focusing on learning ASL
how fast can you type with your condition TSD,
Not really sure, I haven't speed tested in a while. I cam type quickly on my phone (with just my right hand). But on desktop I make a decent amount of mistakes with my left hsnd
Do you think sign language communicates faster than mounting a small display on you some where.. you could become cyborgsharkdude.
Much faster. I've seen numerous ppl sign faster than talking
Hrrmm.. Here's what I'm wondering TSD
People who do not know Sign language control most of the world's resources..
So, to increase the odds of you yourself getting rich, you'd have to increase communication speed and potential with them.
It may be possible to communicate faster with other signers, but they will not give you access to as great a wealth potential.
So by optimizing for speed for a subset of adept physical communicators, your Actual total-communication potential does not increase, in fact it narrows, because you would then be inclined to ONLY communicate with those who knew sign-language. As the acclimation to ASL is a sunk cost, that you would fell dis-inclined to forgo using..
Hrrmm.. Here's what I'm wondering TSD
People who do not know Sign language control most of the world's resources..
So, to increase the odds of you yourself getting rich, you'd have to increase communication speed and potential with them.
It may be possible to communicate faster with other signers, but they will not give you access to as great a wealth potential.
So by optimizing for speed for a subset of adept physical communicators, your Actual total-communication potential does not increase, in fact it narrows, because you would then be inclined to ONLY communicate with those who knew sign-language. As the acclimation to ASL is a sunk cost, that you would fell dis-inclined to forgo using..
Why no both ...
Tp4 have you considered the purely social aspect of being able to communicate with someone who has the same ailment as you?
It's like the preference of geekhackers wanting to talk to fellow keyboard warriors with the same ailment of wallet hack.
It's some form of common ground that, though limited, is more vast than any community you could hope for.
Tp4 have you considered the purely social aspect of being able to communicate with someone who has the same ailment as you?
It's like the preference of geekhackers wanting to talk to fellow keyboard warriors with the same ailment of wallet hack.
It's some form of common ground that, though limited, is more vast than any community you could hope for.
So you're stance is that it's therapeutic to talk to folks who understand..
Yes, that is true.. My concern is, at what point would any such excursions conflict with Tigersharkdude getting rich by playing professional Destiny.
Tp4 have you considered the purely social aspect of being able to communicate with someone who has the same ailment as you?
It's like the preference of geekhackers wanting to talk to fellow keyboard warriors with the same ailment of wallet hack.
It's some form of common ground that, though limited, is more vast than any community you could hope for.
So you're stance is that it's therapeutic to talk to folks who understand..
Yes, that is true.. My concern is, at what point would any such excursions conflict with Tigersharkdude getting rich by playing professional Destiny.
FTFY
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Totally. Playing racing games really helped me regain muscle control in left hand
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Totally. Playing racing games really helped me regain muscle control in left hand
What racing games do you play? I'm always looking for someone to chill with in Assetto Corsa and Project Cars
What is your current prognosis?
What is your current prognosis?
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Totally. Playing racing games really helped me regain muscle control in left hand
What racing games do you play? I'm always looking for someone to chill with in Assetto Corsa and Project Cars
I don't have a graphics card in my pc :(
I play NFS on ps4 and am awaiting the new GT whenever that's supposed to come outWhat is your current prognosis?What is your current prognosis?
NF2 is terminal :(
Show Image(http://i.imgur.com/l7cRf3W.gif)
Why wouldn't I be able to play video games?
Can you still play Video Games.. ??
CAN YOU STILL PLAY VIDEO GAMES ??
Phew...... it's a good thing that we got video games...
Totally. Playing racing games really helped me regain muscle control in left hand
What racing games do you play? I'm always looking for someone to chill with in Assetto Corsa and Project Cars
I don't have a graphics card in my pc :(
I play NFS on ps4 and am awaiting the new GT whenever that's supposed to come out
^^the only treatment is tumor removal.
^^the only treatment is tumor removal.
I take it the surgeries would be expensive and frequent?
^^the only treatment is tumor removal.
I take it the surgeries would be expensive and frequent?
Expensive? Extremely
Frequent? Tumor removal is usually on the table when they have become large enough to cause issues. So far, Ive had a round of surgeries every 7 years or so.
^^the only treatment is tumor removal.
I take it the surgeries would be expensive and frequent?
Expensive? Extremely
Frequent? Tumor removal is usually on the table when they have become large enough to cause issues. So far, Ive had a round of surgeries every 7 years or so.
You sir, are a badass.
^^the only treatment is tumor removal.
I take it the surgeries would be expensive and frequent?
Expensive? Extremely
Frequent? Tumor removal is usually on the table when they have become large enough to cause issues. So far, Ive had a round of surgeries every 7 years or so.
You sir, are a badass.
Well I dis stay at a Holiday Inn last night ..
^^the only treatment is tumor removal.
I take it the surgeries would be expensive and frequent?
Expensive? Extremely
Frequent? Tumor removal is usually on the table when they have become large enough to cause issues. So far, Ive had a round of surgeries every 7 years or so.
You sir, are a badass.
Well I dis stay at a Holiday Inn last night ..
Did you use their pool?
I don't wanna know what happened in that pool. I just wanna know how you rock at life. because you do. <3
Sure, tiger sharks can't be vegetarians!